TY  - BOOK
AU  - Lanier,Heather Kirn
TI  - Raising a rare girl: a memoir 
SN  - 9780525559634
AV  - RJ 520.W65 L36 2020
U1  - 618.97/60420092B 23
PY  - 2020///
CY  - New York
PB  - Penguin Press
KW  - Lanier, Heather Kirn
KW  - Lanier, Fiona,
KW  - Mothers of children with disabilities
KW  - United States
KW  - Biography
KW  - Wolf-Hirschhorn syndrome
KW  - Patients
KW  - Genetic disorders in children
KW  - Human chromosome abnormalities
KW  - Mothers and daughters
N1  - Includes bibliographical references
N2  - "The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--
ER  -